My Story on Health Central

Last time I wrote, I promised a conclusion to my stories on itching and IBD. It’s taken me a long time to figure this one out; there has been lots of trial and error. Actually, there has been more error than success, but I’m close to the point where I can write that post. Stay tuned.

 

In the meantime, check out my story on HealthCentral.com. Health Central is a health-based media company. The group who did my family’s story focuses on telling the stories of people living with chronic illness.  This story is about my journey with colitis and how it’s affected my family. It was pretty therapeutic talking about it with my wife, and I hope you enjoy it. My story is the 2nd one, but all 3 of them are good. Enjoy!

 

Living with Ulcerative Colitis: Matt Robinson’s Story

 

Onward to Health,

LDN Journal: Finding a Doctor (part 2)

I should mention, before I start, that I am writing and posting this series on my experience using low-dose naltrexone (LDN) to treat IBD (colitis, for me). retrospectively. I had originally envisioned writing the LDN journal in a more real-time fashion, but life has prevented me from doing so.

***

The weight of starting over with a new doctor cowed me for days. He just left. He quit. It was hard to believe. Doctors don’t just quit. They move practices, change locations, but they don’t just quit. I sat in this reality for days—He quit; I need a new doctor.

It was nearly a week before I could muster the energy to begin searching. One advantage of being on the east coast (in the U.S.) is there are lots of fantastic doctors. The disadvantage for me was, there are lots of fantastic doctors. But the reality was, I didn’t want any of those fantastic doctors. I didn’t know them. I knew mine. I had spent three years intentionally building a peer-to-peer relationship with him. He understood me, assisted me with my natural methods, and challenged me in my thinking. How long would it take to find that again? A year? Two?

Finding a new doctor is like dating. Someone suggests, “I know this great doctor…” and you go. You set a time, sit together, engage in small chit-chat, and begin to ask get-to-know-you questions. If, by the end of the date, we hit it off, maybe I’ll call you again.

I hadn’t been on a date in more than three years. Read the rest of this entry

LDN Journal #1: Getting the Prescription (1 of 2)

This series focuses on my experience with LDN in treating colitis (and therefore IBD; also applicable to Crohn’s), and not the ‘how to’ of it. There is plenty already written. Read about LDN here and here.

***

The idea for LDN came to me a year ago, but I put it off—I had other treatments to try. At the time, I was just at the end of bacteriotherapy, and wondering where to go next. My wife and I surveyed all of the credible natural treatments of which we had knowledge, and set about the conversation. We discussed what had worked so far: the SCD, probiotics, stress reduction, and now bacteriotherapy was added to the list. We decided to undertake a year of natural antibiotic treatment, as nothing in it contradicted those treatments which were currently working—change the bacterial neighborhood. So LDN went on hold.

The year of antibiotics came and went, and I made significant improvements. However, I still was not fully recovered, so we revisited the idea of LDN. I resumed research. The clinical and anecdotal evidence seemed strong for MS and other autoimmune conditions, and I even found a small study showing its efficacy with Crohn’s—golden. I would need that study if I was to convince my doctor that LDN was worth a try.

As I researched, read, and talked with others, I could not help but get excited. I do this every time I am confronted with a new treatment. New treatments bring new hope, and for some reason I have not explored, just the thought of LDN brought me more hope than usual. I was excited and made an appointment with my doctor, a naturopathic physician in Washington, D.C.

My inner scientist and geek took over, and I prepared for her an LDN briefing package which explained the history of the drug, how we believe it works, its efficacy with IBD, and a list of compounding pharmacies we could contact. I even gave her the name of another doctor she could contact, who has used LDN to treat IBD patients. The briefing was topped off with a complete treatment plan timeline, just so she could see how LDN fit into the big picture.

I think I might have overwhelmed her. Read the rest of this entry

An Invitation to a Journey

I have been writing this blog for about three years now. I started with the goal of consolidating all of the natural approaches to IBD, IBS, and Celiac that work, and sharing some of my experience along the way. It has been a way to share my geeky obsession with learning, and has been a great outlet for me. To that end, I have gotten a lot done.

If you haven’t noticed, I haven’t put out a lot of content over the past six months. I’ve been evaluating the blog, and envisioning where to go from here. In my meditations, I as constantly left with the feeling that something was missing. So I began searching back through all of the blogs and literature I’ve digested (pun intended!) in the last three years. Indeed, there was something missing—people’s experience. Read the rest of this entry

Health Update and Return to Regular Blogging

Not quite the same...but I am back.

After a healthy break from writing, I’m ready to start posting again. Since I get so many comments saying something like, “Great post. Loved the info, but how are YOU doing?”, I thought I ‘d inaugurate my return with a short update on my own health and how I’m doing in healing colitis using natural means.

Since my fecal transplant therapy (FTT, now called Fecal Microbiota Transplant, or FMT–they’re the same thing: a poop transplant) almost exactly a year ago (February, 2011), I’ve been flirting with 100%. Some of my symptoms returned about two weeks after FMT, but I was still improved over my condition pre-FMT.

Pre-FMT, I had 3-4 loose stools per day with no blood and no mucus, and my energy levels were hit or miss. Post FMT, 1-2 mildly formed stools with much improved energy levels. I was now (and still am) able to go on a 10k run or do heavy squats in the gym without fear of soiling myself. But I still wasn’t 100%, and I’m shooting for the stars here. Read the rest of this entry

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